Why bother with Orphan diseases if only a number of people get it and if some don't have cures?
We, all, will have endings to our lives. We are fighting orphan diseases because we don't just want to lengthen the patients lives. We want to help them do what they love the most, what the diseases robbed them of. I will become a doctor soon but and I will be studying life. I want to ask myself this question and to ask every doctor and medical student if they know how to live their lives? It's not the quantity, it's the quality of your lives. The same goes to these orphan disease patients. We know that there are no cure to some but we still are supporting them. We are not fighting a losing battle. We are fighting to bring their humanity back and in this run, they could enjoy living. And this is the best gift a doctor could give to his patients. The gift of life.
